Close

Page 4 of 4 FirstFirst 1234
Results 61 to 79 of 79
  1. #61
    DF PwNagE Geko's Avatar
    Join Date
    Jun 2001
    Location
    Earth
    Posts
    5,971
    Thanks
    1,175
    Thanked:        1,281
    Karma Level
    575

    Default Re: Speaking Gibberish

    Quote Originally Posted by Over Carl View Post
    My case was discussed at a couple of multi disciplinary meetings at Queens Square but they still aren't sure. Got to go to Gt Ormond on the 2nd as an outpatient, looks like they haven't forgotten about me and need to do some more tests.

    I'm ok, but the tablets are making me a bit loopy. Finding it hard to focus and concentrate often, don't sleep much, but happy to be alive and be able to enjoy the little things in life rather than running round like a mad man all day.

    I haven't really been the same since, but fortuneately it seems to be more of a side effect of the tablets rather than a permanent change due to the still undetermined event.
    Good luck. I spent 15 years under GOSH. They are the best...!

  2. #62
    DF Jedi blacksheep's Avatar
    Join Date
    Jun 2006
    Location
    Manchester
    Posts
    3,877
    Thanks
    87
    Thanked:        265
    Karma Level
    488

    Default Re: Speaking Gibberish

    Good luck mate. Ive had sleep issues before and pills are great for short term but not long term what ive been told is you should keep your bed/bedroom as uncluttered as possible and only use it for sleep or sex (no reading etc), you should try not to use computers tv etc half an hour before bed and if you can't sleep or wake up and can't get back to sleep within 15 mins or so you should get up and do something for half an hour or so. Also no lights in your bedroom not even charging LEDs (can't remember the study or numbers but even a charging led can impact sleep)

  3. #63
    DF Super Moderator Over Carl's Avatar
    Join Date
    Apr 2006
    Location
    London
    Posts
    13,116
    Thanks
    3,927
    Thanked:        1,680
    Karma Level
    1275

    Default Re: Speaking Gibberish

    I had a nurse call me to give me an update and she seemed surprised I was still on such a high dosage of steroids.

    She told me to cut my intake by 3/4 which I did yesterday, didn't need sleeping tablets last night and now feel a million times more normal.

    Still don't quite feel 100%, but feeling a million times better than I have for the last few weeks, finally my head seems like it's starting to work again.

    16 Thanks given to Over Carl

    Show/Hide list of the thanked

    4me2 (24th May 2015), Ashley (24th May 2015), beansontoast (3rd June 2015), beerman (24th May 2015), BIG-TED (24th May 2015), BigBird (24th May 2015), Cosmicpore (24th May 2015), DavidF (24th May 2015), dibbler (26th May 2015), evilsatan (24th May 2015), Ganty (29th May 2015), muttleymacclad (24th May 2015), neilb (24th May 2015), prezzy (24th May 2015), tips (30th May 2015), Zoots (24th May 2015) 


  4. #64
    DF Jedi Zoots's Avatar
    Join Date
    Oct 2010
    Location
    Hoth
    Posts
    3,329
    Thanks
    1,648
    Thanked:        1,321
    Karma Level
    368

    Default Re: Speaking Gibberish

    Good to hear some positive news mate.

  5. #65
    DF Moderator piggzy's Avatar
    Join Date
    Jul 2014
    Location
    UK
    Posts
    3,316
    Thanks
    2,810
    Thanked:        1,474
    Karma Level
    284

    Default Re: Speaking Gibberish

    Had to take steroids years ago and I know what you mean. Worst drug out there. Really, really powerful and nasty !

  6. #66
    DF PwNagE Geko's Avatar
    Join Date
    Jun 2001
    Location
    Earth
    Posts
    5,971
    Thanks
    1,175
    Thanked:        1,281
    Karma Level
    575

    Default Re: Speaking Gibberish

    I was on Prednisone for 25 years....!

    Long term use has it's own problems.

  7. #67
    DF Super Moderator Over Carl's Avatar
    Join Date
    Apr 2006
    Location
    London
    Posts
    13,116
    Thanks
    3,927
    Thanked:        1,680
    Karma Level
    1275

    Default Re: Speaking Gibberish

    Had the meeting at GSOH yesterday, no new news, still 50/50 tumour or AVM. only new thing for me was getting to see a picture of it. Before all I had been told was they must have caught it very early as it was small. Seeing a thing looking like a Brazil nut in your head isn't quite as reassuring.

    Also eventually figured out what has been up with my head myself. For the last week I've realised the symptoms I've been experiencing were identical to the signs of a manic episode and my doctor today confirmed my suspicion (was shitting it going in, in case she sectioned me which is why I left it a week). I've been told to stop the steroids and I go back Friday for a reassessment as doc thinks I will go back to normal.

    Tbh, it's been an interesting and unusual experience as the difference I have felt makes me realise I actually probably was previously suffering in a depressed state which would likely be due to Bi Polar. The baffling thing was feeling a lot more positive and happy since I've been out of hospital, whilst having no clarity of thought or focus which apparently is very normal for people in my current state. I'm when I get better fuck cars, they need to start getting me diagnosing people, as even my doctor was amazed (for the third time in a row) with the info I gave her and I hear the money is better.
    Last edited by Over Carl; 3rd June 2015 at 09:46 PM.

    2 Thanks given to Over Carl

    evilsatan (3rd June 2015), Mobileman (3rd June 2015) 


  8. #68
    DF Super Moderator
    evilsatan's Avatar
    Join Date
    Jul 2004
    Location
    Essex
    Posts
    19,957
    Thanks
    1,095
    Thanked:        3,189
    Karma Level
    1539

    Default Re: Speaking Gibberish

    Hope coming off the steroids helps mate, keep us updated.


  9. #69
    DF Super Moderator Over Carl's Avatar
    Join Date
    Apr 2006
    Location
    London
    Posts
    13,116
    Thanks
    3,927
    Thanked:        1,680
    Karma Level
    1275

    Default Re: Speaking Gibberish

    Went in today and they said it is an [Only registered and activated users can see links. ], so I consider myself very lucky.

    However they still don't know what treatment options are suited so I need to go in for an angiogram which basically means they stick a tube in my groin and guide it to my brain then pump in dye so they can clearly see the blood flow. They said it has a one in 500 risk of causing a stroke by their pipe dislodging plaque in my arteries, but if I don't do anything there is about a 2% chance per year of suffering a bleed so I might as well go ahead with it.

    2 Thanks given to Over Carl

    Bald Bouncer (10th July 2015), BIG-TED (10th July 2015) 


  10. #70
    DF Moderator BIG-TED's Avatar
    Join Date
    May 2001
    Location
    Leics UK
    Posts
    1,966
    Thanks
    402
    Thanked:        797
    Karma Level
    389

    Default Re: Speaking Gibberish

    Sounds like the best of a bad lot.?

    this was sent from tapatalk if it makes no sense...
    Run your wife a nice hot bath, light some candles & pour some wine. Then you've at least 40 mins on the xbox plus a clean wife.

    Experts... x is an unknown quantity and spurt is a fast drip.

    Thanks to BIG-TED

    Over Carl (10th July 2015) 


  11. #71
    DF Jedi blacksheep's Avatar
    Join Date
    Jun 2006
    Location
    Manchester
    Posts
    3,877
    Thanks
    87
    Thanked:        265
    Karma Level
    488

    Default Re: Speaking Gibberish

    In one of those "how to spot a stroke" posters it had a surgeon saying that if they get to a stroke victim within a certain period of time (seemed quite long) they can repair 100% of the damage. I guess this is if naturally occurring/normal but I'm guessing already being on the operating table with a neurologist should help negate any stroke issues.

    Anyway - all the best mate, sure it will work out.

    Thanks to blacksheep

    Over Carl (10th July 2015) 


  12. #72
    DF Jedi akimba's Avatar
    Join Date
    Jun 2006
    Location
    UK
    Posts
    2,846
    Thanks
    1,032
    Thanked:        783
    Karma Level
    301

    Default Re: Speaking Gibberish

    I wouldn't trust them mate they the ones talking gibberish, everyone knows you get plaque on ya teeth ;-)

    Really tho they prob do this operation a couple times a week/day even so think those odds are pessimistic.

    Thanks to akimba

    Over Carl (10th July 2015) 


  13. #73
    DF PwNagE WRATH OF BOD's Avatar
    Join Date
    Jul 2004
    Location
    Monkey Hangers
    Posts
    6,591
    Thanks
    2,570
    Thanked:        1,208
    Karma Level
    776

    Default Re: Speaking Gibberish

    i had angiogram on my hart early last year, same odds for that. its a bit strange as i was awake & watching it on a screen above me, was a bit of a bugger when the Doc went into the wrong part of my Hart and i made a strange noise as i gasped for air.
    Doc Says Sorry wrong chamber,lol, was all good though.
    when i had mine done, they do about 20/30 a day.
    Last edited by WRATH OF BOD; 10th July 2015 at 09:41 PM.

    Thanks to WRATH OF BOD

    Over Carl (10th July 2015) 


  14. #74
    DF Super Moderator Over Carl's Avatar
    Join Date
    Apr 2006
    Location
    London
    Posts
    13,116
    Thanks
    3,927
    Thanked:        1,680
    Karma Level
    1275

    Default Re: Speaking Gibberish

    After months of tests, waiting for more, tests, waiting to discuss the outcome, etc., finally I've been told definitely what is up.

    They are 100% sure I have an AVM (malformed blood vessel) in my head, and the incident last year was the result of a bleed.

    The good news is there is only one vessel feeding it and it is reasonably close to the surfaces.

    The bad news is that the artery feeding it seems to be a much larger diameter than normal, and the specialists are of the opinion my AVM appears quite fragile and there is a high chance of another bleed.

    Often these are treated by embolization (feeding glue in to gradually close it up), but they are worried if part of it is successfully glued, that could put too much strain on the remainder which could greatly increase the chance of another bleed.

    Also the other non invasive option (gamma knife - radiation therapy) could be used, but can take up to 2-3 years to take effect and they worry that as my AVM appears fragile, 2-3 years is too long to take chances.

    So they want to perform a craniotomy which means they will cut out part of my skull, then cut out the AVM. The good news is after recovery time (couple of months or so) I should be 100% ready to go back to normal. Bad news is it carries a much higher risk than the other two therapies.

    Now it's up to me to decide whether I want to go ahead with it.

    7 Thanks given to Over Carl

    Bald Bouncer (13th January 2016), BIG-TED (15th January 2016), cassy34 (14th January 2016), DavidF (13th January 2016), evilsatan (13th January 2016), Ganty (14th January 2016), neilb (13th January 2016) 


  15. #75
    DF Super Moderator BertRoot's Avatar
    Join Date
    Sep 2004
    Location
    Poppy Fields
    Posts
    23,910
    Thanks
    1,017
    Thanked:        2,027
    Karma Level
    2653

    Default Re: Speaking Gibberish

    Wow. I would go for the invasive. Kind of all or nothing or would be for me. Good luck.

    Thanks to BertRoot

    Over Carl (13th January 2016) 


  16. #76
    DF PwNagE beerman's Avatar
    Join Date
    May 2001
    Location
    29 Acacia Road
    Posts
    8,441
    Thanks
    1,076
    Thanked:        1,605
    Karma Level
    954

    Default Re: Speaking Gibberish

    Woah, whatever you decide. Good luck.

    Thanks to beerman

    Over Carl (13th January 2016) 


  17. #77
    DF Super Moderator
    DejaVu's Avatar
    Join Date
    Nov 2005
    Location
    Essex
    Posts
    9,103
    Thanks
    1,835
    Thanked:        3,998
    Karma Level
    959

    Default Re: Speaking Gibberish

    All this when you originally just thought you were speaking shit! Wow!
    Best of luck fella! Hope all goes well with what you decide.

    Thanks to DejaVu

    Over Carl (13th January 2016) 


  18. #78
    DF Super Moderator
    evilsatan's Avatar
    Join Date
    Jul 2004
    Location
    Essex
    Posts
    19,957
    Thanks
    1,095
    Thanked:        3,189
    Karma Level
    1539

    Default Re: Speaking Gibberish

    Hope you have some good professional advice to help you make the decision, and whatever you decide best of luck and remember you have many friends here ready to support you where possible.

    Thanks to evilsatan

    Over Carl (13th January 2016) 


  19. #79
    DF Jedi cyprus's Avatar
    Join Date
    Feb 2005
    Location
    Destination
    Posts
    4,460
    Thanks
    855
    Thanked:        1,121
    Karma Level
    804

    Default Re: Speaking Gibberish

    I just want to say don't base your decision on Googling or advice from DF! Get the opinions of as many doctors as you can and base your decision on what they tell you. I think "researching" on the Internet will just stress you out more and make the decision harder than it already is.

    We're here for your moral support though brother. We're all getting fucked on here recently!

    Terry

    Thanks to cyprus

    Over Carl (13th January 2016) 


Page 4 of 4 FirstFirst 1234

Similar Threads

  1. Speaking Clock by Accurist
    By Simate in forum The Dog and Duck
    Replies: 6
    Last Post: 19th September 2008, 07:45 PM
  2. Speaking of pussies..... (SFW)
    By dpSparhawk in forum Your Photos & Artwork
    Replies: 10
    Last Post: 6th September 2007, 10:49 AM
  3. speaking of beyond the grave...
    By TwoPlAnKs in forum The Dog and Duck
    Replies: 5
    Last Post: 10th February 2005, 09:38 PM
  4. Speaking of tits........
    By Pongo in forum The Dog and Duck
    Replies: 2
    Last Post: 6th July 2004, 04:45 PM

Social Networking Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •