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  1. #1
    DF Admin maltloaf's Avatar
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    Default Nephrotic syndrome

    Hi all,

    You may (or may not) have noticed that I haven't been around much recently.

    I have recently been diagnosed with Nephrotic Syndrome.

    It's a condition where the filters in my kidneys have become damaged or inflamed and allow protein to leak into my urine.

    The first I knew about it was an uncontrollable and very sudden weight increase, I was still exercising regularly, eating ok (without being too obsessive about food) and I gained 2 stone in 2 weeks. I am now up to almost 4 stone gained in 4 weeks.

    I also started to get swelling in my ankles and lower legs and this has now gone all the way up to mid way up my back. My calves were always fairly chunky but muscly and toned and now they are just bags of water and measure 53cm around !

    Apparently the protein leaking out causes an imbalance in your body which causes it to store massive amounts of water, hence the swelling and weight gain.

    I have gone from fit, active and happy to unfit, immobile and miserable in just 4 weeks.

    I have had water tablets (furusemide) prescribed to try and drain the water but despite increasing my dose twice, it isn't working so I have shifted none of the weight.

    My specialist promises me that my kidneys are still actually functioning perfectly, just that they aren't filtering protein properly, and I have a biopsy booked for this Thursday to try and find the cause. They have ruled out heart problems and diabetes.

    Anyway, thought I'd just make a quick post to explain what was going on and ask if anyone else has experience with nephrotic syndrome and it's treatment.

    Many thanks,

    malty
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    Ashley (23rd August 2015), B B Leo (24th August 2015), beansontoast (24th August 2015), Bilbo_baggin (24th August 2015), cyprus (23rd August 2015), greens117 (10th September 2015), ibobsy (23rd August 2015), jaguar982 (23rd August 2015), Lou_smorals (23rd August 2015), Mickey (23rd August 2015), Over Carl (23rd August 2015), TAR (24th August 2015), WRATH OF BOD (23rd August 2015), Zoots (23rd August 2015) 


  2. #2
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    Default Re: Nephrotic syndrome

    Hope all goes well for you mate.
    Keep ya chin up
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    Thanks to Mickey

    maltloaf (24th August 2015) 


  3. #3
    DF Moderator Russ's Avatar
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    Default Re: Nephrotic syndrome

    Sorry to hear about this malty, I really hope they can get it all sorted out for you very quickly.

    Thanks to Russ

    maltloaf (24th August 2015) 


  4. #4
    DF Jedi Clubber Lang's Avatar
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    Default Re: Nephrotic syndrome

    Blimey, that is scary. Hope you are back to your old self soon

    Thanks to Clubber Lang

    maltloaf (24th August 2015) 


  5. #5
    DF Super Moderator BertRoot's Avatar
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    Default Re: Nephrotic syndrome

    Jesus mate that sounds awful. Hopefully a decent doctor will come up with a fix for you.

    Thanks to BertRoot

    maltloaf (24th August 2015) 


  6. #6
    DF Jedi Ashley's Avatar
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    Default Re: Nephrotic syndrome

    Sorry to hear that, hope you get a speedy tecivery


    Sent from my iPhone using Tapatalk

    Thanks to Ashley

    maltloaf (24th August 2015) 


  7. #7
    DF Jedi Hangman's Avatar
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    Default Re: Nephrotic syndrome

    Get well soon
    [Only registered and activated users can see links. ]

    Its better to burn out than to fade away...............

    Thanks to Hangman

    maltloaf (24th August 2015) 


  8. #8
    DF Jedi Zippeyrude's Avatar
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    Default Re: Nephrotic syndrome

    Hope you get better soon.

    what does the specialist say is the treatment in the long term?

    Thanks to Zippeyrude

    maltloaf (24th August 2015) 


  9. #9
    DF PwNagE WRATH OF BOD's Avatar
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    Default Re: Nephrotic syndrome

    Sorry to hear about this malty, hope you get sorted soon..

    Thanks to WRATH OF BOD

    maltloaf (24th August 2015) 


  10. #10
    DF Admin maltloaf's Avatar
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    Info Re: Nephrotic syndrome

    Quote Originally Posted by Zippeyrude View Post
    Hope you get better soon.

    what does the specialist say is the treatment in the long term?
    I have pills already to block the leak, plus I will most likely be on steroids to help repair the problem once they find out 100% what it is.

    It's likely that I will be on the ones to stop the leak for a good while.

    The problem currently is they cannot get the fluid to shift, meaning I'm really uncomfortable all the time with severe stomach cramps almost constantly.

    I got admitted yesterday for a big dose of iv diuretic which seemed to start working but never really kicked in. I'm back in again now for another go...
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  11. #11
    DF Admin maltloaf's Avatar
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    Default Re: Nephrotic syndrome

    drugs going in ....[Only registered and activated users can see links. ]
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  12. #12
    DF VIP Member muttleymacclad's Avatar
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    Default Re: Nephrotic syndrome

    Hope you get sorted soon maltey.

    Thanks to muttleymacclad

    maltloaf (24th August 2015) 


  13. #13
    DF PwNagE Mobileman's Avatar
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    Default Re: Nephrotic syndrome

    Chin up malty and hope your on the mend soon 🏼


    Sent from my iPhone using Tapatalk

    Thanks to Mobileman

    maltloaf (24th August 2015) 


  14. #14
    DF VIP Member Fear345's Avatar
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    Default Re: Nephrotic syndrome

    Hope you get sorted soon fella.
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    Thanks to Fear345

    maltloaf (24th August 2015) 


  15. #15
    DF Jedi Zoots's Avatar
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    Default Re: Nephrotic syndrome

    Sorry to hear Malty. I had noticed you were missing (Blaggard too). Hope it sorts itself out quickly.

    Thanks to Zoots

    maltloaf (24th August 2015) 


  16. #16
    DF Jedi ibobsy's Avatar
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    Default Re: Nephrotic syndrome

    Sorry to hear about your ailment.Hope you get well soon and recover full health.

    Thanks to ibobsy

    maltloaf (24th August 2015) 


  17. #17
    DF PwNagE dpSparhawk's Avatar
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    Default Re: Nephrotic syndrome

    Hope you get past this soon mate and recover to full health.

    Thanks to dpSparhawk

    maltloaf (24th August 2015) 


  18. #18
    DF Jedi TAR's Avatar
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    Default Re: Nephrotic syndrome

    Wish you a speedy recovery.
    TAR seems to be a decent bloke!

    Thanks to TAR

    maltloaf (24th August 2015) 


  19. #19
    DF Admin maltloaf's Avatar
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    Default Re: Nephrotic syndrome

    Just had my first ever night in hospital.

    My fluid is finally starting to shift. A little less uncomfortable than I have been. My blood pressure has come down 40 points in 2 days. Also due to the fact I'm now an inpatient, it might mean my kidney biopsy gets brought forward.
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  20. #20
    DF Jedi supraman54's Avatar
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    Default Re: Nephrotic syndrome

    Get well soon Malty..

    supe
    http://www.speedtest.net/result/2920820230.png

    Thanks to supraman54

    maltloaf (24th August 2015) 


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