Nephrotic syndrome

Thread: Nephrotic syndrome

  1. maltloaf's Avatar

    maltloaf said:

    Default Nephrotic syndrome

    Hi all,

    You may (or may not) have noticed that I haven't been around much recently.

    I have recently been diagnosed with Nephrotic Syndrome.

    It's a condition where the filters in my kidneys have become damaged or inflamed and allow protein to leak into my urine.

    The first I knew about it was an uncontrollable and very sudden weight increase, I was still exercising regularly, eating ok (without being too obsessive about food) and I gained 2 stone in 2 weeks. I am now up to almost 4 stone gained in 4 weeks.

    I also started to get swelling in my ankles and lower legs and this has now gone all the way up to mid way up my back. My calves were always fairly chunky but muscly and toned and now they are just bags of water and measure 53cm around !

    Apparently the protein leaking out causes an imbalance in your body which causes it to store massive amounts of water, hence the swelling and weight gain.

    I have gone from fit, active and happy to unfit, immobile and miserable in just 4 weeks.

    I have had water tablets (furusemide) prescribed to try and drain the water but despite increasing my dose twice, it isn't working so I have shifted none of the weight.

    My specialist promises me that my kidneys are still actually functioning perfectly, just that they aren't filtering protein properly, and I have a biopsy booked for this Thursday to try and find the cause. They have ruled out heart problems and diabetes.

    Anyway, thought I'd just make a quick post to explain what was going on and ask if anyone else has experience with nephrotic syndrome and it's treatment.

    Many thanks,

    malty
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  2. Mickey's Avatar

    Mickey said:

    Default Re: Nephrotic syndrome

    Hope all goes well for you mate.
    Keep ya chin up
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  3. Russ's Avatar

    Russ said:

    Default Re: Nephrotic syndrome

    Sorry to hear about this malty, I really hope they can get it all sorted out for you very quickly.
     
  4. Clubber Lang's Avatar

    Clubber Lang said:

    Default Re: Nephrotic syndrome

    Blimey, that is scary. Hope you are back to your old self soon
     
  5. BertRoot's Avatar

    BertRoot said:

    Default Re: Nephrotic syndrome

    Jesus mate that sounds awful. Hopefully a decent doctor will come up with a fix for you.

     
  6. Ashley's Avatar

    Ashley said:

    Default Re: Nephrotic syndrome

    Sorry to hear that, hope you get a speedy tecivery


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  7. Hangman's Avatar

    Hangman said:

    Default Re: Nephrotic syndrome

    Get well soon
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    Its better to burn out than to fade away...............
     
  8. Zippeyrude's Avatar

    Zippeyrude said:

    Default Re: Nephrotic syndrome

    Hope you get better soon.

    what does the specialist say is the treatment in the long term?
     
  9. WRATH OF BOD's Avatar

    WRATH OF BOD said:

    Default Re: Nephrotic syndrome

    Sorry to hear about this malty, hope you get sorted soon..
     
  10. maltloaf's Avatar

    maltloaf said:

    Info Re: Nephrotic syndrome

    Quote Originally Posted by Zippeyrude View Post
    Hope you get better soon.

    what does the specialist say is the treatment in the long term?
    I have pills already to block the leak, plus I will most likely be on steroids to help repair the problem once they find out 100% what it is.

    It's likely that I will be on the ones to stop the leak for a good while.

    The problem currently is they cannot get the fluid to shift, meaning I'm really uncomfortable all the time with severe stomach cramps almost constantly.

    I got admitted yesterday for a big dose of iv diuretic which seemed to start working but never really kicked in. I'm back in again now for another go...
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  11. maltloaf's Avatar

    maltloaf said:

    Default Re: Nephrotic syndrome

    Drugs going in ....[Only registered and activated users can see links. ]
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  12. muttleymacclad's Avatar

    muttleymacclad said:

    Default Re: Nephrotic syndrome

    Hope you get sorted soon maltey.
     
  13. Mobileman's Avatar

    Mobileman said:

    Default Re: Nephrotic syndrome

    Chin up malty and hope your on the mend soon 🏼


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  14. Fear345's Avatar

    Fear345 said:

    Default Re: Nephrotic syndrome

    Hope you get sorted soon fella.
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  15. Zoots's Avatar

    Zoots said:

    Default Re: Nephrotic syndrome

    Sorry to hear Malty. I had noticed you were missing (Blaggard too). Hope it sorts itself out quickly.
     
  16. ibobsy's Avatar

    ibobsy said:

    Default Re: Nephrotic syndrome

    Sorry to hear about your ailment.Hope you get well soon and recover full health.
     
  17. dpSparhawk's Avatar

    dpSparhawk said:

    Default Re: Nephrotic syndrome

    Hope you get past this soon mate and recover to full health.
     
  18. TAR's Avatar

    TAR said:

    Default Re: Nephrotic syndrome

    Wish you a speedy recovery.
    TAR seems to be a decent bloke!
     
  19. maltloaf's Avatar

    maltloaf said:

    Default Re: Nephrotic syndrome

    Just had my first ever night in hospital.

    My fluid is finally starting to shift. A little less uncomfortable than I have been. My blood pressure has come down 40 points in 2 days. Also due to the fact I'm now an inpatient, it might mean my kidney biopsy gets brought forward.
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  20. supraman54's Avatar

    supraman54 said:

    Default Re: Nephrotic syndrome

    Get well soon Malty..

    supe
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